Childhood Eye Cancer Trust launches new online resources for young people affected by retinoblastoma
The charity’s new website is aimed at teenagers and young adults, and includes real life stories and guidance on learning to drive and starting university
09 November 2022
The Childhood Eye Cancer Trust (CHECT) has launched a new website aimed at teenagers and young adults who have had retinoblastoma (Rb).
The website includes real life stories, a makeup tutorial for those with prosthetic eyes, and guidance on major life events including learning to drive and transitioning to secondary school, college and university.
One child per week
is diagnosed with Rb in the UK
The site also hosts an interview with rugby player Will Jubb, who was diagnosed with Rb at the age of two.
It was created with the help of the charity’s Teenage Focus Council, which is made up of members who have had Rb.
It was launched in Birmingham during CHECT’s latest in-person teen event, the first since the start of the pandemic.
CHECT CEO, Richard Ashton, said: “We are delighted to add the website to our existing support services, as it is important that teens and young people not only have a voice but a channel that is specifically for them.”
Ashton added that CHECT has recently also launched a TikTok channel, which he hopes will “raise further awareness of issues relating to living with sight loss and the signs and symptoms of Rb.”
The new website can be found at: www.chect-tya.co.uk
CHECT’s match-funded Christmas appeal
CHECT is a UK charity dedicated to helping people affected by retinoblastoma, including providing support grants to alleviate financial hardship. The charity also provides support and information to families and individuals, funds research into the prevention and treatment of retinoblastoma, raises awareness among health professionals and the public, and influences policy to improve services for patients.
Between 25 November and 31 December this year, the Clive Richards Foundation will be doubling all donations received by CHECT, up to £20,000.
All money raised will go directly towards the charity’s support services, which are offered to all families with a child diagnosed with retinoblastoma in the UK.
To learn more, contact [email protected] or visit the CHECT website.
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