Sight loss support booklet produced by those in the know

A group of leading sight loss charities have joined forces to launch a new information booklet produced to help people when they are newly-diagnosed with sight loss.

The free booklet, Sight Loss: What we need to know, has been authored by a group of 12 people who are living with sight loss, as well as four carers. Drawing on their own experiences, it aims to answer the questions and address the concerns that people have when they are coming to terms with sight loss.

The booklet also contains practical advice about the types of help and support that are available to those who are losing or have lost their sight.

Launched at the Royal College of Ophthalmologists’ Annual Congress (24–26 May), the booklet will be piloted in Moorfields and Whipps Cross hospitals later this year. It is also available online.

Co-author, Isa, who has macular degeneration, told OT: “[When I was diagnosed] it was a trying and frightening time for me. I was not given any information and what I needed was a guide to where to find answers to my questions. If I’d had this booklet at the time, it would have helped me. I hope it helps you to find the support you need.”

Welcoming the publication of the booklet, Professor Caroline MacEwen, president of the Royal College of Ophthalmologists, said: “This information booklet has been written by those who are best qualified to do so – people who have experienced visual loss. It contains information that they collectively agree will be helpful for anyone who is experiencing a new diagnosis of sight loss.

“Currently a comprehensive guide has been lacking and this booklet is much needed and will be appreciated for its supportive and practical advice.”

The charities behind the production of the booklet includes the Association of Directors of Adult Social Services, Blind Veterans UK, Guide Dogs, Royal National Institute of Blind People, the Royal College of Ophthalmologists, Vision 2020 UK and Visionary.